And so this is Christmas...

Her wish was simple
Peace in every nation
Joy in every heart
and a Mitten on every hand

That's it folks. All I want. I have everything l need or want. I have a family who loves me & I love them. I have friends that I cherish and that cherish me. I have my communities who give me more than I could have ever imagined and with whom I hope I give back in kind. I have a roof over my home - my sanctuary, my comfort, my safe haven; I have food in my fridge made with love by my 'meals on wheels' friends; I have coats and mittens and hats and boots to keep me warm in the winter; I have money in the bank; I have my little Annie who sits with me, listens to me, loves me unconditionally - well.. as long as I feed her, brush her and pet her; I have books to read and music to soothe my soul.

And while I may not be a picture of health - I have enough health, strength and resolve to get past whatever lies ahead next year.

I have everything I want.

Back from the edge

Despite my best intention to write thru my latest meltdown every time I sat down to write I couldn't get any words to flow. Lack of concentration, lack of motivation, an abundance of apathy and general malaise! Then there's always my anxiety of divulging how life really is for me as I head to the black hole of self-absorption, fear and a scarcity of self-compassion. These times seem to coincide with bouts of bugs that I seem to get thanks to my not-so-immune system - in this case another bout of cold/bronchitis. I was actually sick when I wrote my happy port-a-cath post but was obviously too excited to mention it.

Too many meds & too many trips to the doctor - both my GP and the clinic. I missed Thanksgiving - although I am grateful to my sister-in-law for sending me 2 turkey dinners and the best-I've-ever-had pea soup to pop in the freezer to be enjoyed when my appetite returned. I missed my best friend's 60th birthday party. I missed a very dear friend's Celebration of Life as well as one of my Callanish friends. I missed a writing class. I was grounded. Reading, TV, movies, laundry, naps - is this my life?? Too much thinking time. Not coping very well at all. I did get out of the house to get some radiation on my hip - that was the highlight.

So really is this my life I ask myself? Where is purpose, where is feeling useful, where are the positive thoughts and feeling of contentment that I used to have? See that's the problem when I have too much time - staying in the moment is so hard. Will I ever live a tranquil life? How do people do that anyway? If you know please pass on your info...

Now a week or so of feeling better and realizing - again! - that I'm a gal that needs a project to not only keep my mind occupied but to feel useful. And so I've offered my services to my Mets Support Group for a couple of things. There is a 'quiet room' on the patient floor of the clinic that needs a little TLC in creating a tranquil and peaceful space for patients and/or their families to spend some private time. Anyone who knows me knows this is my kind of endeavor! I should probably check to see if there's a budget.... The other project is pretty substantial but with the help of Sue - who unfortunately has had to join our club - we think we can pull it off. We want to create a website for the Metastatic Support Group - a resource guide of sorts - oh my my we have so many ideas! Now neither Sue or I have ever built a website but we each have our 'peeps' and will be looking for advice/guidance/expertise and whatever you have to offer. Any & all ideas are welcome - from the Mets Group and from my blogger friends. Of course Sue is going away this week and I'm going away for Christmas so don't be looking for it anytime soon!

I'm getting back on track and feeling better. The radiation treatment was no big deal - only one treatment was scheduled. Next is a 'Orthopantomography' to check out the jaw discomfort. Sounds a little unnerving but it's really just a panoramic 2-dimensional x-ray of my jaw.

What always keeps me safe when I sink below my surface is knowing that with the right amount of patience and the support of my network I always surface and the knowledge that there will always be sadness and gladness in my world - it's my responsiblity to keep the balance.

Rest easy Jill W.
Rest easy Jill M.

Easy-Peasy

Yesterday was time for my monthly pamidronate treatment and I think I may have appeared just a little smug when I waltzed into the treatment room. After our good mornings Nurse T. said 'well let's get that arm warmed up' and I, after puffing out my chest a bit replied ' I don't need to today - I got myself a portacath!' - like a child who wants to show off their new toy!! That's wonderful she says (visualize mutual hug) your life will be so much easier! And it was and it will be. With that I sat down in my recliner and watched as she swabbed the area and inserted the special needle needed for ports - with just a mild pricking sensation. That was it - 2 minutes max. It used to be anywhere from 10-20 minutes, 2-3 hot towels and then up to as many as 5 tries to get a vein. After pumping in some saline in to make sure all is well I settle in for my 60-minute treatment.. all the while making sure that I wave my arms about at every possible opportunity - because I could!

Patti Port-a-cath - my new best friend! She sits just under the skin of my left breastbone, seems to be relatively easy to get along with and while she does jut out a bit you'll all just have to learn to appreciate how she looks!! Cuz I'm already attached to her!

Thanksgiving

It used to be that Thanksgiving was the one time of the year I would be aware of all that is good in my life. These last few years tho I recognize and acknowledge all that is good in my life on an almost daily basis - gratitude being synonymous with thanksgiving.

I am grateful for my understanding and wholly supportive family. All of them - my sister, 3 brothers, 8 nieces & nephews and 11 great nieces/nephews and all my surrogate children over the years. The essence of who and how I am.

I am grateful for the very many long friendships I have been blessed with - friendships that started in childhood and have stood the test of time thru teenage years, love, marriage, divorce, children and grandchildren, thru illness, sadness & losses, thru silliness, laughter, solidarity and the sheer joy of connection. My girlfriends and my manfriends - the foundation of my life.

I am grateful for all my 'new' friends and the paths that brought us together. I am grateful for all the friends that I have known over the last 6 years who shared their lives with me before passing away. There is a debt of gratitude to each them I cannot repay so I will pay it forward.

I am grateful for my communities without which I would not be able to bear so many things. To my Callanish community who continues to help me live in the now of my life and allows me to be as I am, which allows me to grow in ways I cannot articulate. To my Metastatic Cancer Support Group where we lay down everything, where we laugh and cry and commiserate and educate and compare notes on everything from treatments to side effects to doctors to shoes and travel.

I am grateful for the life I have created for myself over the years by virtue of these relationships - not knowing at the time that what I did, when I did it and the people I chose to keep in my world would lead me to this place of contentment. I am grateful that I was smart enough to banish the ugly, the wrong, the hurtful, the senseless and embrace the good, the moral and the honest.

There has been a question rumbling around in my mind this last while: Why have I been given all this time? I don't know the answer to that but I am grateful that I have been given all this time.

Happy Thanksgiving to my world.

Rest easy Martha.

De-Pink

Oh there is a lot being said among my fellow bloggers about this whole 'Pink Thing'! The more I read the more I realize I'm not the only one with an attitude about the: A) Commercialization of Breast Cancer Awareness; B) The idea that someone out there thinks breast cancer is warm & fuzzy; C) The misconception that breast cancer is alway curable and D) That if you spend your time & energy putting on the right clothes and getting your makeup perfect and your hair or wig properly coif-ed you'll feel oh-so-much better about having cancer.

If you want to understand more about how why many of us BC/MCC folks bristle at the idea of being pink'd - here's a good place to start: http://cancerculturenow.blogspot.com/ . I've only just found this blog but Rachel certainly has the gift to get her point across - for me personally a great read and some other great blogs to connect to.

Plan A

I've just realized I left you all hanging so just a quick post before I head off to my mets support group at the clinic.

Met up with Dr. RO last week and it's decided - we're going with Plan A - a little radiation to try and eradicate the new bone tumours. A great Dr. - very imformative, straight-up with possible complications - like trying not to get any of my bladder or colon when they 'hit' me - and answered all my questions to my satisfaction and the big plus - he had on the nicest suit & tie - none of that lab-coat look! Do I really judge some of my Dr.'s by the way the dress - seems so!

Dr. RO is away for a couple of weeks now and I decided that I'd wait till he get back to get started as the pain is bearable so likely I'll hear of the Plan in a week or so. He says that probably only 2 treatements for now and then monitor via Dr. O by way of scans etc unless I start feeling any new symptons. Which of course I have in my upper right arm/shoulder for the last 3 weeks although nothing showed up on the bone scan so I'll deal with that at my next appt in a couple of weeks.

Want to share my fabulous evening out with Irene & David last Thursday. My nephew Chad is a chef at the Fairmont Pacific Rim downtown - quite the luxury hotel I must say - in the upscale Oru dining room. Each month they have a feature dinner item and Chad's creation was the feature for September and being the proud parents we are (!) we went to behold and feast on his creation. We were treated like royalty and spoiled with amazing food. We moved thru exquisite appetizers to dinners. Chad's dinner creation of "Five Spice Venison with seared pine mushroom, sautéed brussel sprouts with kabocha squash purée and venison maple jus" was melt in your mouth delicious and we shared this along with 2 other scrumptious dinners. An then dessert appeared...

I'll let the picture speak for itself - 3 of everything chocolate - very happy that Chadwick was working the desert station that night! We were served all our courses by the chef's - Chad, Head Chef Yvonne, Sous-chef Chris - and Executive Sous-Chef Murray stopped by for a chat - everyone was so generous of their time considering the party of 140 in the private room. I think the way we were treated that night is a testament to how much they like and appreciate Chad - we of course know what a wonderful and amazing person he is!
Running late now!
Have a good week my friends.

Pink Scminck

October is officially known as Breast Cancer Awareness month. My question is this - what about the other 11 months of the year? Is October the only month to say it out loud? To those in the BC community, and those of us with MBC, it would be a fantastical dream if October was the only month we had to deal with it.

Another question is - who decided pink was the right color for cancer? Back in 199? the American Cancer Society joined forces with - guess what - a pharmaceutical company. Conflict of interest perhaps. Then along came Estee Lauder Corp who created the pink ribbon as a symbol for awareness. Fair enough - pink is considered the color for the feminine gender. But let me tell you pink is certainly not the color of cancer. Cancer isn't even a color. It's a lifestyle, it's a job, it's exhausting and it's scary. It isn't pink scarves, pink jewellery, pink makeup, pink ribbons or magazines devoting their October issues to the cause of breast cancer. Cancer inhabits not just the body, it takes up more space in the mind than one can possibly imagine.

The pink world is out of control. Pink is now a business unto itself. If it's pink then let's associate it with BC. Let's create another pink T-shirt, another pink lipstick, another pink coffee mug. Every October thousands of businesses create 'pink' merchandise and sell them with the promise of some token % to be donated to cancer research. Do you really need anymore pink? Instead of buying something pink for $20 and having 10% donated to research consider simply donating the $20 - you'll get a tax receipt for that and you won't have to put that pink thing in the back of your closet in the pink pile. Or simply don't buy it. Unless you really love pink or are under the age of 10.

Rest easy Jill